Rest in peace Talia Joy Castellano. Even though I am devastated by your passing, I’m happy that your pain and suffering is at an end after battling #childhoodcancer for 6 years. Talia had 2 types of cancers: neuroblastoma and pre-leukemia. You inspire me with your passion for bringing awareness to childhood cancer. You have achieved more at 13 than most adults in their entire lifetime. You’ll always be in my thoughts @taliajoy18 You probably don’t realize the scope of your impact on people’s lives. She has been fighting cancer for nearly 7 years and last August she was told she has a new second kind of cancer. The 13 year old was already a YouTube sensation with her makeup tutorials. When she delivered the news about this new form of cancer, she said, “Life is like a journey. It has a beginning, a middle and an end. And I guess my journey is nearing the end.”
Talia has continued to do her makeup videos and do cancer updates. She has enjoyed all the opportunities that she was able to in the last few months. Through it all, she has continued to be her spunky, sassy self. When Talia appeared on The Ellen Show, she was asked how does she keep her spirits up? Her answer; “A little fish once told me, just keep swimming.”
A couple of weeks ago, new scans revealed that her cancer has spread throughout her bones and it is giving her a lot of pain. She has been on IV pain medication to help. While Talia is now out of treatment options, she was still living her life and wants to make sure that she leaves her “footprints and fingerprints” on the world.
She still has a lot of dreams and one of them is to help children and families who are battling cancer. Talia’s favorite charity is the BASE Camp Children’s Cancer Foundation. Talia wants to help Base Camp have a permanent home, so she launched a fundraising campaign called “Bring Hope Home” #prayfortalia
I’m wearing my #purple butterfly dress today to raise #lupusawareness , are you? Lupus is a cause that is very dear to my heart. It’s been 5 years since I was diagnosed with SLE Lupus. Systemic Lupus Erythematous (sle) is a chronic autoimmune disease that may affect the skin, joints, kidneys, brain, and other organs. Basically your body is attacking itself. Lupus is an unpredictable & misunderstood autoimmune disease that ravages different parts of the body. There is currently no cure for lupus. I am currently getting #chemo #cytoxan to try to calm my lupus flare. It’s been a crazy journey these past couple of years living with this: having to battle constant fatigue, putting up with pain physically, mentally, and emotionally and adjusting to a new way of living. But through it all it taught me to be strong and how to live with courage even when faced with a life threatening condition and most of all be thankful for each day I am blessed with. The most important thing I’ve learned since being diagnosed with lupus for 5 years now, is that life is sometimes confusing. It takes sadness to know happiness, noise to appreciate silence, and absence to value presence. I’m truly blessed to wake up this morning with another chance to be a better me. I’m counting my blessings not my problems. #lupusawareness #lupie #lupus #sle #lhandsign #chemotherapy #chemogotnothingonme #chronicallyawesome #putonpurple #pop #bydls #baldisbeautiful #lupusawarenessmonth #lupusproblems #spoonie #lupie #roadtorecovery #raisingawarenessisawayoflife @hibbslupustrust @runningforlupus @lupusorg
Please listen to David Foster Wallace: “This Is Water” (part 2) by brainpicker. This speech addresses: how does one keep from going through their comfortable, prosperous adult life unconsciously? How do we get ourselves out of the foreground of our thought and achieve compassion? “Capital T, Truth is about life before death.”
David Foster Wallace: “This Is Water” (part 1) by brainpicker. David Foster Wallace’s iconic 2005 Kenyon College graduation address. This is without a doubt, some of the best life advice I’ve come across, and perhaps the most simple and elegant explanation of the real value of education.
I’m wearing PURPLE this Friday! Are you? @s5a @lupusorg Saks Fifth Avenue in NYC are urging people to PUT on PURPLE for #lupusawareness on May 17th! If you are in the area, check out the window at the corner of 49th & 5th Ave. #pop #lupus #spoonie #lupie #sle #chronicallyawesome #lupusawarenessmonth